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軟骨無形成症とは / What is Achondroplasia?

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軟骨無形成症とは / What is Achondroplasia?

作者別: eihakuitooka

3-1.bmn111(vosoritide)

BMN111治験フェーズ２、5歳以上の患者が対象者だった／BMN111 phase 2 was for just 5 years and older

eihakuitooka06/04/20130

...

3-1.bmn111(vosoritide)

勇気を振り絞り、慣れない英語でバイオマリン社へメールを送付／Sent an e-mail with unfamiliar English gathering courage

eihakuitooka05/27/20130

米国の治験募集のページを発見し、窓口担当者とすべての治験病院（All...

米バイオマリン社-軟骨無形成症の治療プログラム開発／Biomarin in US development of medical treatment for ACH

3-1.bmn111(vosoritide)

米バイオマリン社-軟骨無形成症の治療プログラム開発／Biomarin in US development of medical treatment for ACH

eihakuitooka05/26/20130

...

1.物語の始まり／begining of the story

念願の退院！長かった産後12日目／leaving the hospital, too long 12 days after delively

eihakuitooka05/25/20131

...

1.物語の始まり／begining of the story

試練と希望ー例え大きな困難があっても、護られ護り抜くことで人生に栄光を感じて欲しい／Trial and Hope – Whatever Difficulty Comes He Can also Have Glory through Save and to be Saved

eihakuitooka05/22/20130

...

1.物語の始まり／begining of the story

物語の始まり、軟骨無形成症と断定／ Begining of the Story, Dignosed as Achondroplasia

eihakuitooka05/20/20130

...

専門機関「骨系統コンソーシアム」とは／specialized agency Japanese Skeletal Dysplasia Consortium, Japan

XX.others

専門機関「骨系統コンソーシアム」とは／specialized agency Japanese Skeletal Dysplasia Consortium, Japan

eihakuitooka05/14/20130

■骨系統コンソーシアムとは骨系統疾患(skeletal...

1.物語の始まり／begining of the story

穏やかな出産後、そして思わぬ宣告／After the Easy Delivery, Unexpected Sentence

eihakuitooka05/13/20131

...

1.物語の始まり／begining of the story

待望の男児、わずか2時間で誕生／The son I always wanted

eihakuitooka05/13/20130

...

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軟骨無形成症とは / What is Achondroplasia?

Category

1.物語の始まり／begining of the story6
2-1.合併症／complications28
2.2.ガイドライン/guideline2
2.成長と適応／growing and mitigation61
3-1.bmn111(vosoritide32
3-2.statin2
3-3.Meclizine3
3-4. Transcon CNP1
3-4. Transcon CNP1
3.新薬／new-medcine57
4.networking43
5.制度／institution6
6.blog31
7. Organization1
8. Diversity & Inclusion3
Trivia2
XX.others7

Archive

Archive

Location

Akatsutsumi, Setagaya-ku, Tokyo, Japan

e-mail: glorytoachondroplasia@gmail.com

Popular (Best 10)

【グローリー・パーソンwith ACH vol.1】「軟骨無形成症患者のための身体表現活動」、日本初の保健体育教師としての挑戦 / “GLORY PERSON with Achondroplasia vol.1 – Physical demonstration for Achondroplasia, Aiming to be Japanese 1st physical education teacher
グローリー・パーソン with ACH西村大樹、2020年東京パラリンピックのセレモニーダンサーの出演を目指す/ Daiki Nishimura, Glorious Person with ACH who dreams performing at the ceremonies upcoming in Tokyo Paralympic Games
「ザッツ・アクトレス」輝かしき軟骨無形成症／ "That's Actress" real brilliant with achondroplasia
GTAオープン・ピクニック in 代々木公園 / GTA Open Picnic in Yoyogi Park Tokyo
Therachon社、小児軟骨無形成症患者の自然歴研究を開始 / Therachon started Observational Study of Children With Achondroplasia
Event Information
Vosoritide 国内第3相試験開始へ / Vosoritide Phase 3 Study going forward
日本で唯一進行中の軟骨無形成症の治験、名大病院、「培養骨髄細胞移植」を用いた独自骨延長術　／Only one keep going clinical trial for ACH in japan that is Distraction osteogenesis with culture expanded bone marrow cells
Ascendis Pharma、小児軟骨無形成症患者の自然歴研究を開始 / Ascendis Pharma started Observational Study of Children With Achondroplasia
Vosoritide Data Update at Biomarin R&D DAY 2018

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軟骨無形成症とは / What is Achondroplasia?

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