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軟骨無形成症とは / What is Achondroplasia?

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軟骨無形成症とは / What is Achondroplasia?

カテゴリー: 3.新薬／new-medcine

3-1.bmn111(vosoritide)

111-901 updated on 30th May. 2017

eihakuitooka06/03/20170

...

3-1.bmn111(vosoritide)

vosoritide P2 第4コーホートの結果開示 / vosoritide P2 result of 4th cohort have been released

eihakuitooka10/23/20160

バイオリン社は、vosoritideフェーズ2における第4コーホートの結果をAmerican Society of Human...

3-1.bmn111(vosoritide)

Vosoritide の現況、ASHG会合で開示か / New information about Vosoritide to be presented in the next ASHG 2016 meeting

eihakuitooka10/07/20160

Dr. Morrys C. Kaisermannのブログ”Treating...

開催「第2回患者申出療養評価会議」等 / The 2nd Conference for another Japanese CU opened

3.新薬／new-medcine

開催「第2回患者申出療養評価会議」等 / The 2nd Conference for another Japanese CU opened

eihakuitooka06/14/20160

...

日本初の拡大治験　/　1st case of Japanese CU Going Forward

3.新薬／new-medcine

日本初の拡大治験　/　1st case of Japanese CU Going Forward

eihakuitooka05/31/20160

...

ドックトークエピソード 7（日本語版) / Doc Talk Episode 7 Japanese Edition

3.新薬／new-medcine

ドックトークエピソード 7（日本語版) / Doc Talk Episode 7 Japanese Edition

eihakuitooka05/20/20160

Growing Stronger がお送りするDoc...

3-1.bmn111(vosoritide)

開かれた乳幼児の治験参加の展望 / Finally Opens for infants/toddlers to Get in Clinical Trial

eihakuitooka05/18/20160

...

BEYOND ACHONDROPLASIAのイネス・アルヴスが自主企画イベントにスカイプで登場 / Inês Alves, Director of BEYOND ACHONDROPLASIA Join by Skype in this Saturday

2.成長と適応／growing and mitigation

BEYOND ACHONDROPLASIAのイネス・アルヴスが自主企画イベントにスカイプで登場 / Inês Alves, Director of BEYOND ACHONDROPLASIA Join by Skype in this Saturday

eihakuitooka05/10/20160

私の中での往年の希望、そして模範であったBEYOND...

フランスのお医者さんいはく「年間成長速度が8cmを記録」/ ”Annual growth velocity got 8 cm/year” the French doctor saied

3.新薬／new-medcine

フランスのお医者さんいはく「年間成長速度が8cmを記録」/ ”Annual growth velocity got 8 cm/year” the French doctor saied

eihakuitooka05/09/20162

...

≪自主企画イベント≫　イタリア渡航報告会　－新薬の最前線と欧州の患者会が示唆する日本への提案 / Briefing Session for My Journey to Italy

2.成長と適応／growing and mitigation

≪自主企画イベント≫　イタリア渡航報告会　－新薬の最前線と欧州の患者会が示唆する日本への提案 / Briefing Session for My Journey to Italy

eihakuitooka05/07/20160

≪Briefing Session for My Jouney to Italia about BMN-111 last up date and EU acitivist'...

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軟骨無形成症とは / What is Achondroplasia?

Category

1.物語の始まり／begining of the story6
2-1.合併症／complications28
2.2.ガイドライン/guideline2
2.成長と適応／growing and mitigation61
3-1.bmn111(vosoritide32
3-2.statin2
3-3.Meclizine3
3-4. Transcon CNP1
3-4. Transcon CNP1
3.新薬／new-medcine57
4.networking43
5.制度／institution6
6.blog31
7. Organization1
8. Diversity & Inclusion3
Trivia2
XX.others7

Archive

Archive

Location

Akatsutsumi, Setagaya-ku, Tokyo, Japan

e-mail: glorytoachondroplasia@gmail.com

Popular (Best 10)

【グローリー・パーソンwith ACH vol.1】「軟骨無形成症患者のための身体表現活動」、日本初の保健体育教師としての挑戦 / “GLORY PERSON with Achondroplasia vol.1 – Physical demonstration for Achondroplasia, Aiming to be Japanese 1st physical education teacher
グローリー・パーソン with ACH西村大樹、2020年東京パラリンピックのセレモニーダンサーの出演を目指す/ Daiki Nishimura, Glorious Person with ACH who dreams performing at the ceremonies upcoming in Tokyo Paralympic Games
「ザッツ・アクトレス」輝かしき軟骨無形成症／ "That's Actress" real brilliant with achondroplasia
GTAオープン・ピクニック in 代々木公園 / GTA Open Picnic in Yoyogi Park Tokyo
Therachon社、小児軟骨無形成症患者の自然歴研究を開始 / Therachon started Observational Study of Children With Achondroplasia
Event Information
Vosoritide 国内第3相試験開始へ / Vosoritide Phase 3 Study going forward
日本で唯一進行中の軟骨無形成症の治験、名大病院、「培養骨髄細胞移植」を用いた独自骨延長術　／Only one keep going clinical trial for ACH in japan that is Distraction osteogenesis with culture expanded bone marrow cells
Ascendis Pharma、小児軟骨無形成症患者の自然歴研究を開始 / Ascendis Pharma started Observational Study of Children With Achondroplasia
Vosoritide Data Update at Biomarin R&D DAY 2018

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軟骨無形成症とは / What is Achondroplasia?

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